Specialist information and charities

Our team is here to support you and provide you with information about what is happening with your baby when it comes to transporting them. Please do not hesitate to ask us any questions you may have during your baby’s transfer.

There are other places you can go to for more general advice and support, or even very specific advice and support relating to certain conditions. Here are some useful links that may help you during this difficult time:

Connect North West is unable to take any responsibility for the information provided by external sources

External sites

British Heart Foundation

Fact sheets about congenital heart disease


The leading UK charity for babies born needing neonatal care

Ickle Pickles

Children’s charity has been raising money for the intensive care equipment that treats these babies and helps keep them alive

Lullaby Trust

Raises awareness of sudden infant death syndrome (SIDS), provides expert advice on safer sleep for babies and offers emotional support for bereaved families

National Childbirth Trust

Their mission is to support parents through the first 1,000 days, to have the best possible experience of pregnancy, birth and early parenthood

Neomates (on X)

Peer support on X (Twitter)


NEC UK is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC)

Peeps HIE

Providing support to parents, families & friends of those affected by HIE (hypoxic-ischaemic encephalopathy), raising awareness of HIE

Rainbow Trust

Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need the bespoke support we offer


Spoons is as charity that supports families experiencing neonatal care in the Greater Manchester area. With a holistic approach to support they can can offer help from admission to the neonatal unit and beyond in the wider community

The Smallest Things

Promoting the good health of premature babies and their families

Tiny Tickers

A small national charity that works to improve the chances of babies born with a serious heart condition

Together for shorter lives

A lifeline for families who care for seriously ill children